A YOUNG West Byfleet girl with a rare genetic condition has delivered a petition to the Prime Minister asking the government to deliver a modern rare disease framework before the end of... Read more »
A WEST Byfleet father is walking barefoot from Land’s End to Edinburgh to raise money to find a treatment for his daughter’s rare genetic syndrome. Chris Brannigan, an army Major, set off... Read more »
THE coronavirus crisis has halted efforts to find an effective therapy to treat a young Woking girl who has a rare genetic syndrome. Hasti Brannigan, 8, was born with Cornelia de Lange... Read more »
THE parents of an eight-year-old girl with a rare genetic syndrome for which there is currently no treatment are trying to raise £2.5 million for research and clinical trials of a possible... Read more »