Tag: Cornelia de Lange Syndrome
OVERWHELMING support for the Barefoot Soldier on a 1,200-mile charity trek in the USA is outweighing the criticism he has suffered. Major Chris Brannigan, who is raising money for research into his...
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THE soldier who walked barefoot from Lands End to Edinburgh to raise money for research into his daughter’s rare condition has set out on an even longer fundraising trek. Major Chris Brannigan,...
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A GIRL from West Byfleet with a rare genetic condition was “treated like royalty” when she was chosen to receive the salute at the final dress rehearsal for Trooping the Colour. Hasti...
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THE Hope for Hasti campaign to find a treatment for a young West Byfleet girl’s rare genetic condition has raised more than £618,000. Chris Brannigan, Hasti’s father, completed his epic 700-mile barefoot...
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A YOUNG West Byfleet girl with a rare genetic condition has delivered a petition to the Prime Minister asking the government to deliver a modern rare disease framework before the end of...
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A WEST Byfleet father is walking barefoot from Land’s End to Edinburgh to raise money to find a treatment for his daughter’s rare genetic syndrome. Chris Brannigan, an army Major, set off...
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THE coronavirus crisis has halted efforts to find an effective therapy to treat a young Woking girl who has a rare genetic syndrome. Hasti Brannigan, 8, was born with Cornelia de Lange...
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THE parents of an eight-year-old girl with a rare genetic syndrome for which there is currently no treatment are trying to raise £2.5 million for research and clinical trials of a possible...
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